She was such a stubborn woman, didn’t even tell her friends she had cancer and we couldn’t either. My dad was run ragged and even although all the family pulled together to help he still got the heavy end of the work.
do not beat yourself up, my mum was the same, she would not entertain going into a hospice. Sorry for the long post but any advice would be very welcomed right now, I want to help her at the end not just pretend it's not happening. I hate the thought of her being home alone if anything happens but it seems everyone is burying their heads and hoping it doesn't happen, no one seems to have even discussed palliative care with any of them. As a daughter in law I feel limited as to who I can contact but she has 2 sons and a husband who are all worried about upsetting her. I feel she needs someone with her the majority of the time but she is quite a stubborn and strong minded lady who wont even have the word hospice mentioned.
End of life timetable for glioblastoma full#
I know no end is the same for anyone, I want her to have care as my father in law is working full time and trying to be a full time carer. I personally think she has done incredibly to fight this now for 18 months as I know they predict life expectancy of 12-18 months. She has been confused, sort of a dementia for the past year now. She rarely gets out of bed, she's very weak physically. She still has the clot but the have stopped the blood thinners now because of this brain bleed. Latest scan has shown the tumour hasn't grown but she has got a big bleed on her brain. she became partially blind (I think it's the tumour) so has stopped being as active. This was the first hurdle, treat the clot a d risk a bleed or leave the clot to prevent a bleed?!įast forward a few months. Blood tests showed her platelets were dangerously low. She developed a blood clot in her leg so they prescribed blood thinners, she then began bruising all over her body. The hospital suggested stage 2 chemo earlier this year, after the first dose that is when things completely changed. The results after the chemo showed the tumour hadn't shrunk but hadn't grown either. She battled through and remained quite well in herself throughout all the treatment, we took this as a positive sign. Left frontal lobe.īy July 2017 she was recovering from surgery, they had managed to debulk the tumour. After tests and results we were told it was a brain tumour.
In June 2017 my mother in law had what we initially thought was a stroke.
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